Diagnosis guide

What to do in the first 30 days after a diagnosis

Receiving an autism diagnosis for your child can feel overwhelming. This guide breaks the first month into manageable steps so you can move forward with clarity, not panic.

10 min read Written for parents Ontario-specific
Before you read on

First, breathe. A diagnosis is not a loss. It is a name for something that was always there, and now that you have the name, you can get the right support. You are not behind. You are exactly where you need to be.

Week 1: Process before you plan

The first thing to do after a diagnosis is nothing. Give yourself a few days before you start researching, calling, or telling people. The grief, relief, confusion, and love you feel all at once are completely normal. You do not need to have answers yet.

1
Get a copy of the written diagnosis report
Ask the diagnosing psychologist or paediatrician for the full written report. You will need this document for every service, school accommodation, and funding application. Store it somewhere safe and make a few copies.
2
Write down your questions
As questions come to you, write them down. What does this mean for school? What therapies are available? Will my child live independently? There are no silly questions. You will find answers to all of them over time.
3
Tell only who you are ready to tell
You do not owe anyone this information right now. If you are not ready to tell grandparents or extended family, that is okay. This is your family's news to share on your timeline.

Week 2: Register for Ontario's Autism Program (OAP)

The Ontario Autism Program is the province's main funding and support program for autistic children and youth. The waiting list can be long, so register as soon as possible, even if you are not sure what you need yet.

How to register for the OAP
4
Register for the OAP waitlist
Even if you are unsure about therapy right now, registering early means you will receive funding sooner. Children can receive up to $140,000 in core clinical funding before age 18, and up to $55,000 per year for intensive services when younger.
5
Contact your local school board's special education department
If your child is school-age, contact the special education coordinator at their school. Your child is entitled to an Individual Education Plan (IEP) which outlines accommodations and support. The diagnosis report is what you need to start this process.

Week 3: Learn what therapies exist

You will hear a lot of terms in the coming weeks. Here is a plain-language breakdown of the most common ones.

Applied Behaviour Analysis (ABA)

ABA is the most common therapy funded by the OAP. It focuses on building communication, social, and daily living skills through structured learning. There are different approaches within ABA, from intensive one-on-one sessions to naturalistic strategies woven into everyday activities. It is worth asking providers about their specific approach.

Speech-Language Therapy (SLP)

Helps with communication skills including spoken language, alternative communication methods (like picture boards or communication devices), and social communication. Many children on the spectrum benefit greatly from SLP.

Occupational Therapy (OT)

Helps children with sensory processing, fine motor skills, and daily living skills like dressing, eating, and writing. If your child has sensory sensitivities, OT can make a significant difference to their comfort and participation at school and home.

A note on therapy culture

Not all therapy approaches are equal, and the autism community has important ongoing conversations about which methods are respectful of autistic identity. As you explore options, look for providers who are strengths-based, who listen to your child, and who see your child as a whole person, not a list of deficits to fix.


Week 4: Build your support circle

6
Find other parents who get it
The most valuable resource you will ever find is another parent who has walked this road. Acceptance Haven exists exactly for this. Join our parent circles to connect with South Asian families in Ottawa who understand the cultural dimension of this journey.
7
Look after yourself too
Caregiver burnout is real. You cannot pour from an empty cup. Seek support for yourself through community groups, your GP, or a counsellor. The OAP's Caregiver Support program offers free coaching and connection for parents.
8
Know your rights
In Ontario, your child has the right to an education, to accommodations in school, and to accessible public services. If you ever feel your child's needs are not being met, you have the right to advocate, escalate, and seek independent support.

Key contacts in Ottawa

Ontario Autism Program (OAP)

Register for provincial funding and support services. Free to register. Start here.

CHEO Autism Services

Children's Hospital of Eastern Ontario. Diagnostic assessments, therapy, and specialist referrals for Ottawa families.

Ottawa Autism Resource Centre

Local support, workshops, and navigation help for families in the Ottawa area.

Ontario Disability Support Program (ODSP)

Financial support for older youth and adults with disabilities. Plan ahead.

Autism Speaks Canada

National resources, toolkits, and family support guides.

Remember

You do not have to figure all of this out in 30 days. This guide is a starting point, not a to-do list to complete. Move at a pace that works for your family. Every step forward counts.